Description
Our daughter Jennifer has a rare disease called Mucolipidosis. There is no cure or treatment yet, but science is promising, gene therapy and other breakthroughs are a vision now, we just need funding for research, and then hopefully trials. Please help by being a corporate sponsor, participating in our virtual run, or donating!
Thank you for your participation in the 2021 Virtual Raleigh Run for Rare! Your involvement helped us raise over $35,000 to support families and fund research for ML (Mucolipidosis) and MPS (mucopolysaccharidosis), rare genetic disorders that have no cures.
This year’s event is a virtual 5K run or 1 mile walk, and will take place virtually on Saturday, March 27 and we would love to have you join us!
To participate:
1. Register for the race or build a team: bit.ly/mpsvirtualrun2021
2. Walk, run, or roll on March 27th
3. Share your photos to social media and tag @mpssociety and #mpsrunforrare2021
4. Submit your photos and times to katelyn@mpssociety.org
We’re on the way to raising $50,000 for research through this year’s event. We need your help to reach our goal! Please consider joining us as we run for RARE!
National MPS Society
https://mpssociety.org/event/virtual-raleigh-run-for-rare/